The East London and Essex HCC organises a variety of events to reflect the training, educational and peer-support needs of healthcare professionals involved in the care of patients with sickle cell disease and thalassaemia.
Resources and Organisations:
Utilise resources from organisations such as the Sickle Cell Society https://www.sicklecellsociety.org/ and local NHS trusts. These organisations provide educational materials, support services, and can offer workshops or talks.
UK Thalassaemia Society:
Offers resources, support, and advocacy for individuals with thalassaemia and their families .https://ukts.org/
Thalassaemia International Federation
The Thalassaemia International Federation (TIF) has developed an internationally-recognised educational programme, with the objective to provide lifelong education opportunities for health professionals, patients and their families, and raise awareness amongst policy makers and the community at large.
https://thalassaemia.org.cy/what-we-do/education/
If you are a healthcare professional and wish to be kept up to date about our events and courses, please email bartshealth.hcc@nhs.net
Sickle Cell Society - Care standards
Sickle Cell Society in Childhood -Standards
NICE Guidance
Sickle cell disease: managing acute painful episodes in hospital
HCC Guidelines
Papers
A-Guide-to-School-Policy-June-2016-00000002.pdf (sicklecellsociety.org)
FINAL_Guide-To-Sickle-Cell-and-Employment-Version_1_2019.pdf (sicklecellsociety.org)
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