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  • More
    • HOME
    • ABOUT US
      • Meet the Team
      • MDT Referral
      • Patient Information
    • EDUCATION AND RESEARCH
    • HOSPITAL LOCATIONS
    • COMMUNITY SUPPORT GROUPS
    • NEWS & EVENTS
    • PATIENT/CARER FEEDBACK
    • CONTACT US
    • Primary Care Management
  • HOME
  • ABOUT US
    • Meet the Team
    • MDT Referral
    • Patient Information
  • EDUCATION AND RESEARCH
  • HOSPITAL LOCATIONS
  • COMMUNITY SUPPORT GROUPS
  • NEWS & EVENTS
  • PATIENT/CARER FEEDBACK
  • CONTACT US
  • Primary Care Management

EDUCATION AND RESEARCH

The East London and Essex HCC organises a variety of events to reflect the training, educational and peer-support needs of healthcare professionals involved in the care of patients with sickle cell disease and thalassaemia. 


Resources and Organisations: 

Utilise resources from organisations such as the Sickle Cell Society https://www.sicklecellsociety.org/  and local NHS trusts. These organisations provide educational materials, support services, and can offer workshops or talks.


UK Thalassaemia Society: 

Offers resources, support, and advocacy for individuals with thalassaemia and their families .https://ukts.org/

 

Thalassaemia International Federation

The Thalassaemia International Federation (TIF) has developed an internationally-recognised educational programme, with the objective to provide lifelong education opportunities for health professionals, patients and their families, and raise awareness amongst policy makers and the community at large.

https://thalassaemia.org.cy/what-we-do/education/


If you are a healthcare professional and wish to be kept up to date about our events and courses, please email bartshealth.hcc@nhs.net 

ADDITIONAL RESOURCES

Sickle Cell Society - Care standards

Sickle Cell Society in Childhood -Standards 


NICE Guidance

NICE Guidance 


Sickle cell disease: managing acute painful episodes in hospital


HCC Guidelines 

Sickle Cell Disease 

 

Papers

Exacel NEJM 2024

Telfer Blood Reviews 2024

A-Guide-to-School-Policy-June-2016-00000002.pdf (sicklecellsociety.org)

FINAL_Guide-To-Sickle-Cell-and-Employment-Version_1_2019.pdf (sicklecellsociety.org)


Primary care management

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